Burning Man

Okay this is pretty wild…

Looks like I am going to go to Burning Man this year after all.

I feel as strong as I ever have right now. And I suspect that at the beginning of September I will still feel this way or better being that much further removed from the chemotherapy treatments.

I also found out that I will be taking ATRA for 15 days every three months. Thus I will be “light sensitive” only in those months. The way it falls out, I will not be light sensitive during Burning Man.

Believe me I will be extra cautious and limit my sun exposure time as much as possible. If things do not seem right, I will get out of there ASAP.

So, I got an extra ticket. Any friends of mine daring enough to go along???

2 thoughts on “Burning Man”

  1. absolutely unbelievable. I hope Burning Man is the best ever. I also hope you never forget the gift you have been given – a second chance. Count your blessings daily and be thankful for all that you have. Remember how quickly it can fall apart. We are an incredible mix of exquisite frailty and indomitable resilience. Celebrate your life. Jimmy

  2. hi, how u doing lately? my mom is in the hospital now and she got the same type of the lukemia as u do, one week ago her white blood count is growing up to 1.4 and 4 days ago her count suddenly drops to .4 till now, i’m so worry about her and she will take the bone marrow test today. so worry~~

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