Okay this is pretty wild…
Looks like I am going to go to Burning Man this year after all.
I feel as strong as I ever have right now. And I suspect that at the beginning of September I will still feel this way or better being that much further removed from the chemotherapy treatments.
I also found out that I will be taking ATRA for 15 days every three months. Thus I will be “light sensitive” only in those months. The way it falls out, I will not be light sensitive during Burning Man.
Believe me I will be extra cautious and limit my sun exposure time as much as possible. If things do not seem right, I will get out of there ASAP.
So, I got an extra ticket. Any friends of mine daring enough to go along???